Parent Resource & Information
YOUR ROLE AS A PARENT OF A CHILD WITH A DISABILITY
Parents
play a valuable role in developing their childŐs educational program. You
know your child better than anyone else on earth. When school personnel and
parents work together to develop and implement meaningful educational programs,
everyone wins! If your child is not making progress or is not receiving appropriate
services, you can request an IEP team meeting to discuss modifying your childŐs
program.
REQUESTING AN IEP TEAM MEETING
Schools must convene an Individual Education Program (IEP)
team meeting within ten school days of the written request of any IEP team
memberŃthis means you, mom and dad. It is important that you come prepared
to your childŐs IEP meetings.
DONŐT GO ALONE!
Bring your spouse, family member, friend, neighbor,
or a NAPPE advocate to your childŐs IEP meetings. Be on time for the meeting.
Always be respectful and courteous. (You donŐt want your childŐs teacher going
back to his or her classroom upset with you.) Organize your childŐs records,
investigate placement and service options, and understand your rights. For
many parents, this is a life long process. Schools generally appreciate parent
involvement. When you are an assertive advocate for your child, the school
will respect you. They know that you are committed to making sure your childŐs
school experience is successful. Though you may encounter resistance at the
meeting, parents often learn later that their child has secret allies within
the school system.
HOW DO I KNOW WHETHER MY CHILD IS ELIGIBLE
FOR SPECIAL EDUCATION SERVICES?
Under IDEA, a "child with a disability" is a child between
the ages of 3 and 21 with mental retardation, hearing impairments, speech
or language impairments, visual impairments, emotional disturbance, orthopedic
impairments, autism, traumatic brain injury, other health impairments, or
specific learning disabilities AND who, by reason thereof, needs special education
and related services. Tennessee also includes deaf-blindness, multiple disabilities,
intellectual giftedness, and functional delay as disability categories. You
can click on any disability to link to the eligibility criteria established
by the Tennessee Department of Education for that disability. The Tennessee
Department of Education adopted new eligibility criteria effective July 2002.
The IEP team will use this criteria to determine whether your child will receive
special education and related services. Under Section 504, "handicapped person"
means any person who has a physical or mental impairment that substantially
limits one or more major life activities, has a record of such an impairment,
or is regarded as having such an impairment. If you suspect your child may
have a disability, make a written request for an evaluation. Click here for
an example of a sample letter. After you sign the "Informed Written Parental
Consent" which indicates which evaluations will be conducted, the school will
have 40 school days to conduct a comprehensive evaluation, convene an IEP
team meeting, and implement the IEP if your child is determined to be eligible
for special education and related services. (Rule 0520-1-9-.05)
DOCUMENTING COMMUNICATION WITH THE SCHOOL
SYSTEM
It is important to document all communication with the school
system. This will allow you to express how much you appreciate your childŐs
teachers, principals, related service providers, etc. It will also allow the
school to respond when there is a potential problem. Teachers and principals
are responsible for educating many students. They also have a lot of people
within the school system that they have to answer to. Help them remember and
follow through on your requests by putting them in writing. If the problems
donŐt get better, you will have a long paper trail of your efforts to address
them. Always keep a copy of your letters. You can make a copy before you send
a letter or hand deliver it to the school, and ask them to provide you with
a copy. Click here for examples of sample letters. For helpful hints on how
to craft letters, go to www.wrightslaw.com/advoc/articles/Letter_to_Stranger.
HOW DO I GET STARTED?
Request a NAPPE training. NAPPE offers community education
presentations on a variety of topics including the legal rights of children
with disabilities, symptoms of particular disabilities, the value of including
children with disabilities in the general education classroom, effective and
respectful approaches to solving behavior problems, and strategies to implement
educationally useful programs. Start a NAPPE support group in your area. Children
are an amazing gift, but that doesnŐt mean raising them is always easy. NAPPE
support groups provide an opportunity for parents to exchange ideas and share
resources. Support groups may also invite guest speakers to meetings. This
is an informal way to begin to build a network of parents and professionals
in your area who are dedicated to enforcing the rights of children with disabilities.
Contact us to explore the possibilities in your area. Attend trainings offered
by STEP (Support and Training for Exceptional Parents). Click here for the
STEP calendar. If you canŐt find the training you want or a time and location
convenient for you, contact us--NAPPE will sponsor a STEP training. For copies
of Rights of Children with Disabilities and Parent Responsibilities, Section
504 Manual, Interagency Agreement, Administrative Complaint Form, Mediation
Request, Due Process Hearing Request, go to: www.state.tn.us/education/speced/selegalservices.
STEP web site: http://www.tnstep.org
Lingo
Albhabet Soup: Glossary of Terms and Acronyms in Special Education
ADD Attention Deficit Disorder
ADHD Attention Deficit Hyperactive Disorder
CDC Comprehensive Development Class (a self-contained special education classroom).
CP Cerebral Palsy
DCS Department of ChildrenÕs Services
DD Developmental Disabilities or Developmental Delays
DHS Department of Human Services
DMH/MR Department of Mental Health and Mental Retardation
ED Emotionally Disturbed
EHA Education of the Handicapped Act ESY Extended School Year
FAPE Free Appropriate Public Education
FERPA Family Educational Rights and Privacy Act
HI Hearing Impaired
IDEA Individuals with Disabilities Education Act
IEP Individualized Education Program
IFSP Individualized Family Service Plan
IQ Intelligence Quotient
LD Learning Disabled
LEA Local Educational Agency
LRE Least Restrictive Environment
MD Muscular Dystrophy
MH Multiply Handicapped
MR Mental Retardation
OCR Office of Civil Rights (U.S. Department of Education)
OHI Other Health Impaired
OT Occupational Therapy
PT Physical Therapy
SEA State Educational Agency
SED Serious Emotional Disturbance
TBI Traumatic Brain Injury
TEIS Tennessee Early Intervention Services
TP&A Tennessee Protection and Advocacy
VR Vocational Rehabilitation
IEP's
Evaluations
STEP web site: http://www.tnstep.org